Tuesday, October 6, 2009

DMRF eNews - October 2009

DMRF eNews

October 2009 - to ensure delivery, please add
[mailto:enewsletter@dystonia-foundation.org]
enewsletter@dystonia-foundation.org to your address book.

Monumental Research Grant Awarded to the Dystonia Community

We are pleased to tell you that the National Institutes of Health (NIH)
have announced the funding of a five year, $6 million award aimed at
forming a multicenter Dystonia Coalition to cultivate a better
understanding of the primary focal dystonias and find better therapies,
including Cervical Dystonia, Spasmodic Dysphonia, Blepharospasm, and
others. Leading the Coalition will be H. A. Jinnah, MD, PhD, of Emory
University and his co-director is Joel Perlmutter, MD of Washington
University. The Coalition will bring together the most committed dystonia
researchers in North America and Europe, along with dystonia patient
advocacy groups. The Dystonia Medical Research Foundation (DMRF) is proud
to play an integral role by providing logistical and planning support for
the Coalition. The first meeting of the Coalition is scheduled for November
5th.

For more information, please [http://dmrfinsights.blogspot.com/] click
here.

DMRF receives the Child Neurology Foundation Advocacy Award

The DMRF has been selected as the 2009
[http://childneurologyfoundation.org/main_awards_4.cfm] Child Neurology
Foundation’s Advocacy Award of Merit recipient. We are thrilled to
receive this award from CNF, an organization that is dedicated to
advocating for children and adolescents with neurologic disorders. In
announcing the award, CNF states, “The Dystonia Medical Research
Foundation demonstrated innovativeness and achieved phenomenal impact on
behalf of the greater community. It gladdens us that we can honor the
organization nominated by Dr. Jonathan Mink. DMRF is regarded as one of the
strongest organizations providing advocacy while also engaging the
scientific community to pursue research.”

Awareness Update

Billy McLaughlin, DMRF Ambassador, continues to raise awareness about
dystonia. [http://abclocal.go.com/wls/video?id=7023468] Click here to see
his interview on ABC7.

H1N1 and You

As we enter into flu season and the H1N1 swine flu continues to make
headlines, the DMRF is receiving increasing inquiries about whether it is
safe for individuals who get botulinum toxin injections to get flu
vaccines. The answer is that it is safe to have both kinds of injected
medicines, but some simple precautions should be taken.
To learn more about flu precautions,
[http://www.dystonia-foundation.org/pages/botulinum_toxin___flu_vaccine/555.php]
click here.

Community Day 2009

Are you looking for ways to save money this holiday season? Consider
purchasing a $5
[http://www.dystonia-foundation.org/filebin/Morepdfs/Community%20Day%2009%20Flyer.pdf]
coupon book that will provide timely, cost saving coupons at Bon Ton Stores
Nationwide. All money raised from the sale of the coupon books will
support the DMRF.

Email Emma at [mailto:epinto@dystonia-foundation.org]
epinto@dystonia-foundation.org to purchase your coupon book today!

Dystonia, Stress & the Holidays

Does the holiday season stress you out? Do you want to share how you are
feeling?
[http://www.surveymonkey.com/s.aspx?sm=pJ1aT_2f0gzkRLiZvzjx_2f4JA_3d_3d]
Click here to partipate in the DMRF survey, Dystonia, Stress & the
Holidays.

Upcoming Events

10/11/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=72] NJ Dogs
for Dystonia

10/11/09
[http://www.dystonia-foundation.org/pages/going_the_dystance_for_dystonia/564.php]
Bank of America Chicago Marathon

10/17/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=173]
Dystonia Poker Run

10/25/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=57] Basket
Bash

10/26/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=87]
Dystonia Golf and Tennis Classic

10/29/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=77] NJ
Tricky Tray

11/14/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=48]
Community Day 2009

12/23/09
[http://www.dystonia-foundation.org/pages/view_event/225.php?id=73] Help
Find A Cure for Dystonia

Order your DMRF tshirt today!

Show your support and raise awareness. Order your DMRF tshirt today for
$20.

Sizes available:

Children's S, M, L

(available in grey & white)

Women's S, M, L and XL

(available in blue & white)

Women's XXL

(available in white only)

Men's S, M, L, XL and 2X

(available in grey & white)

Please note that women's shirts are fitted and tend to run small. If
unsure of sizing, please order an equivalent size in Men's.

To order your shirt,

[https://dystonia.securesites.net/dystonia/pages/merchandise/277.php]
click here

Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at

[mailto:enewsletter@dystonia-foundation.org?subject=Feedback%20about%20eNews]
enewsletter@dystonia-foundation.org

Would you like to access the newsletter 24/7?

[http://dmrfenews.blogspot.com/] dmrfenews.blogspot.com

Would you like to receive updates by text message?

Text DYSTONIA to 90999.

Are you an iPhone

or iTouch user?

If so, check out the DMRF's new app to stay up-to-date on the latest news
from the Foundation and the dystonia community.

To get the app, visit the iTunes App store and search for "DMRF app".

Join us on one of our social networks:

[http://www.facebook.com/inbox/?ref=mb#/pages/Dystonia-Medical-Research-Foundation/46820882711]

[http://www.myspace.com/thedmrf]

[http://thedmrf.ning.com/]

[http://twitter.com/dmrf]

Contact Information

One East Wacker Drive, Suite 2810
Chicago, Illinois 60601
800.377.3978

[mailto:enewsletter@dystonia-foundation.org?subject=Questions,%20comments%20or%20concerns]
enewsletter@dystonia-foundation.org
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© 2009 DMRF