Tuesday, June 29, 2010

DMRF eNews - June 2010

DMRF eNews
June 2010 - to ensure delivery, please add
[11]enewsletter@dystonia-foundation.org to your address book.

Dystonia Awareness Week

June 6-12, 2010 is Dystonia Awareness Week. During this time, the DMRF
encourages members of the community to help educate the public about the
disorder. Consider some of the following ways to help raise awareness:
* Talk with one person a day about what dystonia is and how it impacts your
life
* Share information about dystonia with others by passing out trifold cards
(for information on how to get your trifold cards, email
[12]dystonia@dystonia-foundation.org)
* Participate in Dystonia Twitter Awareness Day on June 8th

Want to learn more about how dystonia impacts the lives of others? Stay tuned
for email profiles on individuals affected with dystonia presented throughout
awareness week. Forward them to your friends and family members.

Every effort makes a difference! Spread the word and raise awareness by sharing
with others information about dystonia.

Calling all Twitter Users - Dystonia Awareness Twitter Day

As part of Dystonia Awareness Week, Tuesday June 8th is Dystonia Twitter
Awareness Day, a time where Twitter users unite and talk about the impact of
dystonia on their lives. It's a great time to learn more about the disorder,
ask questions and get to know others who are affected.

The goal is for as many people as possible to tweet about dystonia and create a
trending topic. Last year's event generated a lot of interest and participation
online and we hope to build upon that success.

Get started now - sign up for a Twitter account at [13]htt://twitter.com.

Need more information on how to get started? [14]Click here for more
information.

Already have a Twitter account? Follow us at
[15]@dmrf today!

Looking for content to tweet about? Consider retweeting (or reposting) @dmrf.

DMRF Members Increasing Awareness and Making a Difference!


On Friday June 11, look for DMRF member Jason Dunn on a special episode of
"Extraordinary Humans: Muscles" on the National Geographic Channel. The episode
was partially filmed at the DMRF's 2009 John H. Menkes Children and Family
Symposium. Check local listings for air times. For a preview of the episode,
[16]click here.

What did you think about the episode? Tweet about it. Join @dmrf online on
Twitter and share your comments, thoughts and feelings.

Changing Keys, a film about guitarist and DMRF Awareness Ambassador Billy
McLaughlin, is scheduled to be broadcast on public television during the next
several months. Check your local listings to see if the film will be aired in
your area!

To identify your local public television affiliate, visit: http://www.pbs.org/.
If you do not see Changing Keys listed on the programming schedule, contact the
affiliate and make a request!

Watch for eNews alerts - we will share information about upcoming show times.

Upcoming Events
[17]

6/05/10 [18]Central Jersey SG Meeting
[19]Colorado SG Meeting
[20]Alley Run (Longview, TX)
6/06/10 [21]Dystonia Awareness Week Begins
[22]RNR San Diego Marathon & 1/2 Marathon
6/07/10 [23]Adult Dystonia SG Meeting (NY)
6/08/10 [24]Dystonia Twitter Awareness Day
6/12/10 [25]Greater Dallas Dystonia/Dysphonia SG Meeting
[26]Central Virginia Dysphonia/Dystonia SG Meeting
[27]Sherman Area SG Meeting
6/17/10 [28]New Jersey Dystonia Golf Invitational
6/19/10 [29]Southeast PA SG Meeting
6/29/10 [30]Central Oregon SG Meeting
7/07/10 [31]Mount Sinai SG Meeting
7/10/10 [32]New Mexico SG Meeting
7/17/10 [33]Baltimore/John Hopkins SG Meeting
8/01/10 [34]RNR Chicago 1/2 Marathon
8/14/10 [35]North Bay California SG Meeting
8/16/10 [36]2nd Annual Minnesota Dystonia Golf Classic
8/21/10 [37]Madison Mini-Marathon
8/28/10 [38]Fairfield, California SG Meeting
[39]

For information about these or other events, please email us at
[40]enewsletter@dystonia-foundation.org.


References

1. mailto:enewsletter@dystonia-foundation.org?subject=Feedback%20about%20eNews
2. http://dystance4dystonia.org/joomla/index.php?option=com_content&view=article&id=47&Itemid=55
3. http://dystance4dystonia.org/joomla/index.php?option=com_content&view=article&id=46&Itemid=54
4. http://dmrfenews.blogspot.com/
5. http://www.facebook.com/inbox/?ref=mb#/pages/Dystonia-Medical-Research-Foundation/46820882711
6. http://www.myspace.com/thedmrf
7. http://thedmrf.ning.com/
8. http://twitter.com/dmrf
9. mailto:enewsletter@dystonia-foundation.org?subject=Questions,%20comments%20or%20concerns
10. http://www.dystonia-foundation.org/
11. mailto:enewsletter@dystonia-foundation.org
12. mailto:dystonia@dystonia-foundation.org?subject=I%27d%20like%20to%20order%20trifold%20cards
13. http://twitter.com/
14. http://www.dystonia-foundation.org/pages/create_a_trend/338.php
15. http://twitter.com/dmrf
16. http://channel.nationalgeographic.com/episode/muscles-4923/Overview#tab-Videos/08201_00
17. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=27&Itemid=89&year=2010&month=05&day=14&title=deep-brain-stimulation-forum-a-dystonia-symposium&uid=8f24db63e8c7c06db597a82258b43c11
18. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=54&Itemid=89&year=2010&month=06&day=05&title=central-jersey-support-group-meeting&uid=3564426ec62cb9114e6540d31ad43492
19. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=88&Itemid=89&year=2010&month=06&day=05&title=dystonia-sg-of-colorado-meeting&uid=993d6d5a18bf4db53804a0a27335e981
20. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=78&Itemid=89&year=2010&month=06&day=05&title=alley-run&uid=45aa34315b242ebc7f8fef30e4229236
21. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=74&Itemid=89&year=2010&month=06&day=06&title=dystonia-awareness-week&uid=f047d81510cec092d70463189eab9041
22. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=85&Itemid=89&year=2010&month=06&day=06&title=rnr-san-diego-marathon-a-12-marathon&uid=98977199a5ce7cffc3eeb22ccc2011e9
23. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=68&Itemid=89&year=2010&month=06&day=07&title=adult-dystonia-sg-meeting&uid=2868abc2ddbbe18fdd1255e615bd3926
24. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=75&Itemid=89&year=2010&month=06&day=08&title=dystonia-twitter-awareness-day&uid=fd6b30b7d21a4758d9516080fbcfb931
25. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=84&Itemid=89&year=2010&month=06&day=12&title=greater-dallas-dystoniadysphonia-sg-meeting&uid=15680f6fb82764c73a8fbc9424072e59
26. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=86&Itemid=89&year=2010&month=06&day=12&title=central-virginia-dysphonia-dystonia-sg-meeting&uid=678a6bbdfa2256a39aa1d83c4689d9d6
27. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=89&Itemid=89&year=2010&month=06&day=12&title=the-sherman-area-dystonia-sg-meeting&uid=0687f70f231b3b2da3eea046bda02bfd
28. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=40&Itemid=89&year=2010&month=06&day=17&title=new-jersey-dystonia-golf-invitational&uid=1bf0fbc16aca53d2812d78ed5ab97962
29. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=63&Itemid=89&year=2010&month=06&day=19&title=southeast-pa-support-group-meeting&uid=89163b5675b96d7db2422e737a90c597
30. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=90&Itemid=89&year=2010&month=06&day=29&title=dystonia-sg-of-central-oregon-meeting&uid=48e845ca7447fc3cb77a5c4745caa7d2
31. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=59&Itemid=89&year=2010&month=07&day=07&title=mount-sinai-support-group-meeting&uid=8fc920c0cbef2ecf400de08a1b158f50
32. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=91&Itemid=89&year=2010&month=07&day=10&title=new-mexcio-dystonia-sg-meeting&uid=71b384d187fb426fe96fcae098b0578e
33. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=52&Itemid=89&year=2010&month=07&day=17&title=baltimorejohn-hopkins-dystonia-support-group-meeting&uid=79252326e2f512127c522b24a989b9d1
34. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=13&Itemid=89&year=2010&month=08&day=01&title=rnr-chicago-12-marathon&uid=b56d94196ade45390331925750e505f6
35. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=61&Itemid=89&year=2010&month=08&day=14&title=north-bay-ca-support-group-meeting&uid=8304527f4eb40c265f056d44f8ae5814
36. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=21&Itemid=89&year=2010&month=08&day=16&title=2nd-annual-minnesota-dystonia-golf-classic&uid=ae832f5d9b92889ddcddd75e7350e8db
37. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=79&Itemid=89&year=2010&month=08&day=21&title=madison-mini-marathon&uid=8a7e512913a87fa8b3a336988b128708
38. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=57&Itemid=89&year=2010&month=08&day=28&title=fairfield-ca-support-group-meeting&uid=c762c5b4dbb954e16ceb405a464c06bc
39. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=3&Itemid=89&year=2010&month=04&day=24&title=calvertnathans-family-yard-sale-nj&uid=56df1b1f345151c8062576c91bdd6daa
40. mailto:enewsletter@dystonia-foundation.org?subject=I%27d%20like%20more%20information%20on%20events

Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at

[1]enewsletter@dystonia-foundation.org

[2]Go the Dystance4Dystonia and run for those who can't!

[3]Host a Dogs4Dystonia Dog Walk in your community today!

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Text DYSTONIA to 90999.

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Contact Information

One East Wacker Drive, Suite 2810
Chicago, Illinois 60601
800.377.3978
[9]enewsletter@dystonia-foundation.org
[10]www.dystonia-foundation.org
© 2010 DMRF

Monday, June 7, 2010

In Memoriam - Shari Farber Tritt


It is with profound sadness that we announce the death of a member of the DMRF family, Shari Farber Tritt. Shari and her husband Ira touched the hearts of millions through the dystonia documentary film, TWISTED several years ago. For those of us who knew her, Shari was an inspiration every day. Although dystonia took much from her, she never let it defeat her. Shari had a love of life, an infectious laughter, a devotion to her family and the courage she demonstrated was a source of strength for so many in our community. Shari died on Saturday after a tragic accident in their swimming pool. She will be missed by many. Our sympathies go out to Ira, her parents, Harriett and Joel, and her sister Beth.