Tuesday, April 20, 2010

DMRF eNews - April 2010

DMRF eNews
April 2010 - to ensure delivery, please add
[11]enewsletter@dystonia-foundation.org to your address book.

New Research Funding Announced

DMRF's Medical and Scientific Advisory Council (MSAC) recently met to review
grant and fellowship applications. The MSAC is compromised of clinicians and
researchers from a diversity of scientific fields charged with helping us
determine the most scientifically sound and relevant studies to fund. Projects
selected for funding this year aim to help us learn more about how torsinA
functions in cells, discover new genes responsible for cervical dystonia, and
potentially identify new therapeutic targets. To see a complete list of
projects approved for funding this year [12]click here.

Upcoming Meetings

As part of our ongoing effort to increase awareness about dystonia, the DMRF
exhibits at a few neurological meetings each year. At these meetings, we hand
out information about dystonia to neurologists, and also promote our research
funding opportunities. These meetings provide a wonderful opportunity to
interact with and educate people about dystonia and keep people who do know
about dystonia informed about what is going on in the dystonia community. Here
are a few meetings that we will be attending and exhibiting at in the near
future:

American Academy of Neurology (AAN) Annual Meeting

The annual meeting of the AAN is being held April 10-17 in Toronto, Ontario.
The AAN is an international professional association of more than 22,000
neurologists and neuroscience professionals dedicated to promoting the highest
quality patient-centered neurologic care. Representatives from DMRF will be in
attendance to sit in on scientific and poster sessions on dystonia and will be
distributing information to meeting attendees in the exhibit hall. In a
combined effort with other dystonia patient groups who will be present at this
meeting, we will also be distributing information about the Dystonia Coalition
and its research funding opportunities.

We are pleased to announce that at his year's meeting the AAN will be
presenting acclaimed musician Billy McLaughlin, who has focal dystonia, with
their Public Leadership in Neurology Award. Billy, who was appointed as DMRF's
Awareness Ambassador in 2008, has worked tirelessly to increase awareness of
dystonia. Congratulations, Billy!

First International Congress on Treatment of Dystonia

The First International Congress on Treatment of Dystonia will be held May 6-8
in Hannover, Germany. This meeting will feature plenary sessions, lectures,
poster presentations and teaching courses all focused on current treatments for
dystonia. The goal of this meeting is to identify unmet therapeutic needs, in
the hopes of fostering collaboration to improve currently available treatments,
as well as stimulating research for new therapeutic approaches. Hundreds of
participants from all over the world are expected to attend.

Dystonia Advocacy Day

The return of spring is a perennial reminder that Dystonia Advocacy Day will
soon be here. Our 2010 Advocacy Day is scheduled for Tuesday, May 4th and
Wednesday, May 5th at the Saint Gregory Hotel in Washington, DC. With over 100
dystonia advocates from across the country already registered, this year's
event looks like it may be our most successful yet.

If you would like to participate in Dystonia Advocacy Day and meet with the
offices of your Members of Congress to advocate for the legislative needs of
the dystonia community, please email Dane Christiansen, the DMRF's Grassroots
Coordinator, at [13]dchristiansen@dystonia-foundation.org for additional
information.

Other Upcoming Events
4/23/10 [14]Margaritaville (MA)
4/24/10 [15]Rock N Roll Nashville Marathon & 1/2 (TN)
4/24/10-
4/25/10- [16]Calvert/Nathans Family Yard Sale (NJ)
5/01/10 [17]Dystonia Bowl-A-Thon (NY)
5/02/10 [18]Dogs4Dystonia (NE)
5/02/10 [19]Flying Pig Marathon (OH)
5/02/10 [20] [21]Eugene Marathon (OR)
5/08/10 [22]5/3 River Bank Run (MI)
5/15/10 [23] [24]Dogs4Dystonia (VA)
5/14/10-
5/15/10 [25]DBS[26] Forum & Dystonia Symposium-San Francisco(CA)
6/01/10 Dystonia Twitter Awareness Day
6/06/10 [27]RNR San Diego Marathon (CA)

For information about these or other events, please
[28]enewsletter@dystonia-foundation.org.

References

1. mailto:enewsletter@dystonia-foundation.org?subject=Feedback%20about%20eNews
2. http://dystance4dystonia.org/joomla/index.php?option=com_content&view=article&id=47&Itemid=55
3. http://dystance4dystonia.org/joomla/index.php?option=com_content&view=article&id=46&Itemid=54
4. http://dmrfenews.blogspot.com/
5. http://www.facebook.com/inbox/?ref=mb#/pages/Dystonia-Medical-Research-Foundation/46820882711
6. http://www.myspace.com/thedmrf
7. http://thedmrf.ning.com/
8. http://twitter.com/dmrf
9. mailto:enewsletter@dystonia-foundation.org?subject=Questions,%20comments%20or%20concerns
10. http://www.dystonia-foundation.org/
11. mailto:enewsletter@dystonia-foundation.org
12. http://www.dystonia-foundation.org/pages/research_in_2010/148.php
13. mailto:dchristiansen@dystonia-foundation.org?subject=I%20want%20to%20become%20a%20dystonia%20advocate%21
14. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=2&Itemid=89&year=2010&month=04&day=23&title=margaritaville-dance-for-dystonia-ma&uid=abe61d01c00638419d919592835a39af
15. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=6&Itemid=89&year=2010&month=04&day=24&title=rock-n-roll-country-music-nashville-marathon-and-12&uid=4218801c397b622731903e2190719c8b
16. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=3&Itemid=89&year=2010&month=04&day=24&title=calvertnathans-family-yard-sale-nj&uid=56df1b1f345151c8062576c91bdd6daa
17. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=26&Itemid=89&year=2010&month=05&day=01&title=dystonia-bowl-a-thon-ny&uid=1902a1d2c66d12622c6ef4eea3b16f3c
18. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=22&Itemid=89&year=2010&month=05&day=02&title=dogs4dystonia-dog-walk-omaha-ne&uid=dfab701d7ae7a8c0218ad6bf93b6198e
19. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=8&Itemid=89&year=2010&month=05&day=02&title=flying-pig-marathon&uid=495ac4ebf4c7199b3466297b6c5aa23d
20. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=9&Itemid=89&year=2010&month=05&day=02&title=eugene-marathon&uid=b4dae39293fdeb23805409ccb0ffaab2
21. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=9&Itemid=89&year=2010&month=05&day=02&title=eugene-marathon&uid=b4dae39293fdeb23805409ccb0ffaab2
22. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=10&Itemid=89&year=2010&month=05&day=08&title=53-river-bank-run&uid=e555d4f462fa99e24ea8b2411db47b94
23. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=28&Itemid=89&year=2010&month=05&day=15&title=dogs4dystonia-dog-walk-reston-va&uid=216fdf93ceb26b7ba867b0a06ee59439
24. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=28&Itemid=89&year=2010&month=05&day=15&title=dogs4dystonia-dog-walk-reston-va&uid=216fdf93ceb26b7ba867b0a06ee59439
25. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=27&Itemid=89&year=2010&month=05&day=14&title=deep-brain-stimulation-forum-a-dystonia-symposium&uid=8f24db63e8c7c06db597a82258b43c11
26. http://www.dystonia-foundation.org/pages/view_event/225.php?id=168
27. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=11&Itemid=89&year=2010&month=06&day=06&title=rock-n-roll-san-diego-marathon-and-12&uid=9217600d6cf9a88303d85a0790f71d0e
28. mailto:enewsletter@dystonia-foundation.org?subject=I%27d%20like%20more%20information%20on%20events

Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at

[1]enewsletter@dystonia-foundation.org

[2]Go the Dystance4Dystonia and run for those who can't!

[3]Host a Dogs4Dystonia Dog Walk in your community today!

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800.377.3978
[9]enewsletter@dystonia-foundation.org
[10]www.dystonia-foundation.org
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