Wednesday, July 6, 2011

DMRF eNews - June 2011

DMRF eNews

June 2011


To ensure delivery, please add [1]enewsletter@dystonia-foundation.org to your
address book.

DMRF and the Movement Disorder Society

The Dystonia Medical Research Foundation (DMRF) is honored to be featured in
the June/July edition of the Movement Disorder Society website.

Check out the following articles to find out how the DMRF helps patients and
physicians, how we are working to train the next generation of Movement
Disorder Specialists, and to get a sneak peek at the upcoming 5th International
Dystonia Symposium.

* [2]DMRF Provides Essential Services for Physicians and Patients Resources
Designed to Support Patient Care
* [3]Training Tomorrow's Movement Disorder Superheroes - DMRF and Merz
Partner to Offer Clinical Movement Disorders Fellowships with a Focus on
Dystonia
* [4]5th International Dystonia Symposium - It's Not What You Think!

Design the Coolest Bag Ever!

Submissions needed to design official bag of the

6th John H. Menkes Children & Family Dystonia Symposium.

Enter our design-a-bag contest and get the chance to create a re-usable bag for
use by attendees of the Children & Family Dystonia Symposium (Aug 19-21, 2011 -
Chicago).

For details, go to [5]http://www.dystonia-foundation.org/bag

YOU'RE INVITED TO ATTEND THE

6TH John H. Menkes Children & Family Dystonia Symposium


August 19-21, 2011 at the Holiday Inn Mart Plaza, Chicago, IL.

The purpose of the symposium is to bring individuals and families together to
learn about dystonia and the DMRF, interact with experts, and find support from
one another. There will be special sessions for children ages 6-12, teens,
siblings, parents of affected children, and dystonia-affected adults/parents.

[6]CLICK HERE for more information and to learn how to register.

Dystonia Awareness Week

DMRF encourages everyone in the dystonia community to help educate the public
about this disorder during Dystonia Awareness Week, June 5-11, 2011.

* Share information about dystonia with others by passing out trifold cards
(to request the trifold cards, email [7]dystonia@dystonia-foundation.org).
* Talk with one person a day, sharing your experience with dystonia.
* Join us on June 7th for Dystonia Twitter Awareness Day

Every effort makes a difference! So let's spread the word to raise awareness.

Dystonia Twitter Awareness Day

Join the DMRF and others interested in making a difference in the dystonia
community. Tell your friends, followers and family about this wonderful
opportunity to raise awareness and educate others about dystonia.

Get started now - sign up for a Twitter account at [8]http://twitter.com

Already have a Twitter account? Follow us at [9]@dmrf today!

Need a little more info? [10]CLICK HERE.

Get ready, get set - and Tweet away on Dystonia Twitter Awareness Day!

Check out Billy McLaughlin on the early show

DMRF Awareness Ambassador Billy McLaughlin appeared on The Early Show to
discuss his journey with dystonia.

[11]Click here to see the clip of his interview and hear more about his
inspiring story.

"Faces of Dystonia" is for Families

When a person is diagnosed with dystonia, the whole family is affected. Every
family member experiences dystonia in their own way. Spouses, parents,
children, and siblings are all invited to share their stories as part of "Faces
of Dystonia."

Share your story here! [12]http://www.dystonia-foundation.org/faces

To view "Faces of Dystonia" [13]CLICK HERE.

Upcoming Support Group Meetings

6/04 - [14]Los Angeles Dystonia (Los Angeles, CA)

6/11 - [15]Greater Dallas Dystonia/Dysphonia (Dallas, TX)

6/11- [16]Southwest Region of Florida (Tampa, FL )

6/28 -[17] University of Miami South Florida Dystonia (N Miami, FL)

7/23 - [18]Quad-City Dystonia (Eldridge, IA)

7/26 -[19] Univ of Miami SF-Broward/Palm Beach (Deerfield Beach, FL)

8/10 - [20]The Phoenix Arizona Dystonia (Phoenix, AZ)

8/13 - [21]North Bay Dystonia (Santa Rosa, CA)

Coming Soon...

6/05 - [22]Walk for Dystonia Awareness/Florence, MA

For more information on the Dystance4Dystonia program, please email Tammy at
[23]treed@dystonia-foundation.org or

give her a call at 312-447-5098 today.

Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at[24] enewsletter@dystonia-foundation.org

Would you like to access the newsletter 24/7? [25]dmrfenews.blogspot.com

Would you like to receive updates by text message?

Text DYSTONIA to 90999

Join us on one of our social networks:

[26][jpeg] [27][jpeg] [28][jpeg]

[29][jpeg] [30][jpeg]

In This Issue

DMRF featured on MDS website

Design the Coolest Bag Ever

Children & Family Symposium

Dystonia Awareness Week

Twitter Awareness Day

Billy on The Early Show

Faces of Dystonia

Upcoming Support Group Mtgs

Coming Soon

[31]Go the Dystance4Dystonia and run for those who can't!

[32]Host a Dogs4Dystonia Dog Walk in your community today!

[33]Are you an American Express card holder looking for additional ways to
support the work of the DMRF?

* Please see Terms & Conditions below

[34]Are you a federal government or military employee looking to support the
work of the DMRF?

Dystonia Medical Research Foundation One East Wacker Drive, Suite 2810,
Chicago, IL 60601-1905

Phone (312) 755-0198 Toll Free (800) 377-3978 Fax (312) 803-0138

Web www.dystonia-foundation.org Email dystonia@dystonia-foundation.org

* Terms and Conditions for the Membership Rewards program apply. Visit
[35]membershiprewards.com/terms for more information.

Dollar donations are tax deductible the full extent allowed by law however,
donations of Membership Rewards points are not tax deductible.Please note:
American Express will deduct a transaction fee of 2.25% from the donation to
cover processing costs. The charities will receive your donation amount, minus
the 2.25% American Express processing fee, from our partner JustGive. This
transaction fee is similar to or less than the processing fee the charity would
pay if you were to charge your donation with your American Express® Card
through any other means (i.e., over the phone to the charity, through the
charity's website, etc.). This transaction fee only applies to monetary
donations placed on your American Express® Card and not to donations that are
made via the redemption of Membership Rewards points. Dollar donations are tax
deductible the full extent allowed by law however, donations of Membership
Rewards points are not tax deductible.Please consult your tax advisor on the
deductibility of a donation of Membership Rewards points.

References

1. mailto:enewsletter@dystonia-foundation.org
2. http://www.movementdisorders.org/monthly_edition/2011/06/dmrf.php
3. http://www.movementdisorders.org/monthly_edition/2011/06/fellowship.php
4. http://www.movementdisorders.org/monthly_edition/2011/06/symposium.php
5. http://www.dystonia-foundation.org/pages/bag_design_contest/629.php
6. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=147&Itemid=89&year=2011&month=08&day=19&title=6th-john-h-menkes-children-a-family-dystonia-symposium&uid=8c2ce47afdc141a8f8ae81e238afa412
7. mailto:dystonia@dystonia-foundation.org?subject=Requesting%20trifold%20cards%20for%20awareness%20week
8. http://twitter.com/
9. http://twitter.com/#%21/dmrf
10. http://www.dystonia-foundation.org/pages/create_a_trend__participate_in_dystonia_twitter_awareness_day/338.php
11. http://www.cbsnews.com/stories/2011/05/27/earlyshow/main20066772.shtml?tag=mncol;lst;1
12. http://www.dystonia-foundation.org/pages/faces/611.php
13. http://www.dystonia-foundation.org/pages/faces_of_dystonia/620.php
14. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=222&Itemid=89&year=2011&month=06&day=04&title=los-angeles-dystonia-support-group&uid=044429d13c58254d05ced864adbb772c
15. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=235&Itemid=89&year=2011&month=06&day=11&title=greater-dallas-dystoniadysphonia-support-group&uid=82f8f5d5d486217a8767464f13aa5c34
16. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=225&Itemid=89&year=2011&month=06&day=11&title=southwest-region-of-florida&uid=37b663d07011d0be799ab288bbc93474
17. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=226&Itemid=89&year=2011&month=06&day=28&title=the-university-of-miami-south-florida-dystonia-support-group&uid=c4e294b7b86946995deeccb4d22dca42
18. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=215&Itemid=89&year=2011&month=07&day=23&title=quad-city-dystonia-support-group&uid=d21c08afb42baa375221956851da6e3c
19. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=228&Itemid=89&year=2011&month=07&day=26&title=the-university-of-miami-south-florida-dystonia-support-group-mtg-browardpalm-beach-group&uid=5ab923a7a06fc53f1081328069a41d6c
20. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=232&Itemid=89&year=2011&month=08&day=10&title=the-phoenix-arizona-dystonia-support-group&uid=a27f75d826969e65d8ba67f475b111b7
21. http://dystance4dystonia.org/joomla/index.php?option=com_jevents&task=icalrepeat.detail&evid=157&Itemid=89&year=2011&month=08&day=13&title=north-bay-dystonia-sg-meeting&uid=34fead075feda77c759f4f1df2925fde
22. http://www.rsvpbook.com/event.php?476265
23. mailto:treed@dystonia-foundation.org?subject=Dystance4Dystonia%20Program%20Information
24. mailto:enewsletter@dystonia-foundation.org?subject=Thoughts%20about%20eNews
25. http://dmrfenews.blogspot.com/
26. http://www.myspace.com/thedmrf
27. http://www.youtube.com/user/cemiwire
28. http://www.facebook.com/pages/Dystonia-Medical-Research-Foundation/46820882711
29. http://twitter.com/dmrf
30. http://thedmrf.ning.com/
31. http://dystance4dystonia.org/joomla/index.php?option=com_content&view=article&id=47&Itemid=55
32. http://dystance4dystonia.org/joomla/index.php?option=com_content&view=article&id=46&Itemid=54
33. https://amex.justgive.org/nonprofits/donate.jsp?ein=95-3378526
34. http://www.dystonia-foundation.org/pages/combined_federal_campaign/595.php
35. https://secure.cmax.americanexpress.com/Internet/US/Travel/CTN/Components/CTN_ECOMM_TSO_SERVICE_OFFERED/Terms%20and%20Conditions_112443.html