DMRF eNews - February 2010

DMRF eNews

February 2010 - to ensure delivery, please add
[mailto:enewsletter@dystonia-foundation.org]
enewsletter@dystonia-foundation.org to your address book.

The Dystonia Medical Research Foundation (DMRF) is pleased to announce the
formal launch of two new programs, Dystance4Dystonia and Dogs4Dystonia.
Both programs came as a result of some of our most dedicated members as
they looked at ways to do more to support the dystonia community and the
work of the Foundation.

Dystance4Dystonia

Dystance4Dystonia is one of the exciting new programs of the Dystonia
Medical Research Foundation. Those who take part in the Dystance4Dystonia
program will participate in marathons, 10K, 8K and 5K runs and walks in
several communities across the country in 2010, helping to raise much
needed funds. Support garnered for Dystance4 Dystonia program will benefit
the work of the Dystonia Medical Research Foundation (DMRF).

Dystance4Dystonia came from long-time member Cindy DuVal and the Puget
Sound Dystonia Support Group. Entering into it's 10th year, the walk has
made a tremendous impact on the dystonia community in the Washington area.
Our many thanks to Cindy and members of the support group for all of their
work over the years!

Calling all runners, walkers and volunteers to join Dystance4Dystonia

We are looking for runners (all levels), walkers and people that want to
make a difference in our community to join us as we partake in a number of
fun races across the country, helping to raise much needed funds in the
process. Think you can’t make a full marathon? Don’t worry, we have
full, ½ marathons, 8K, and 5K and we need your help to reach our goal.

All participants will receive an official 2010 event t-shirt,
refreshments and a huge THANK YOU from the Dystonia Medical Research
Foundation and its network. See our list of races below.

If you or someone you know is interested in going the Dystance4Dystonia,
please contact Lissa at
[mailto:lsalvatierra@dystonia-foundation.org?subject=More%20information%20on%20Dystance4Dystonia]
lsalvatierra@dystonia-foundation.org. Please make sure you contact Lissa
if you would like to register to participate in support of the DMRF for any of the races.

2010 Races

Are you ready to run now? We are looking for people to participate in
our March and April races and are waiting to hear from you! Run for those
who can't!

03/14/10 Dallas 1/2 Marathon

03/21/10 Bank of America Shamrock Shuffle 8k

04/24/10 Nashville Marathon and 1/2

05/01/10 Wisconsin Marathon

05/02/10 Flying Pig Marathon

05/02/10 Eugene Marathon

05/08/10 5/3 River Bank Run

06/06/10 San Diego Marathon and 1/2

06/26/10 Seattle Marathon and 1/2

08/01/10 Chicago 1/2 Marathon

09/05/10 Virginia 1/2 Marathon

09/19/10 Philadelphia 1/2 Marathon

10/03/10 San Jose 1/2 Marathon

10/10/10 Bank of America Chicago Marathon

10/24/10 Los Angeles 1/2 Marathon

11/14/10 San Antonio Marathon and 1/2

12/05/10 Las Vegas Marathon

Questions: Contact Lissa, the Manager of Special Events, at
[mailto:lsalvatierra@dystonia-foundation.org?subject=More%20information%20on%20Dystance4Dystonia]
lsalvatierra@dystonia-foundation.org or 312.447.5095 to find out how you
can go the Dystance4Dystonia!

Follow Dystance4Dystonia on Facebook

[http://www.facebook.com/pages/Dystance4Dystonia/296350820945]
http://www.facebook.com/pages/Dystance4Dystonia/296350820945

and on Twitter
[http://twitter.com/dyst4dystonia] http://twitter.com/dyst4dystonia

Dogs4Dystonia

"Dogs are not our whole life, but they make our lives whole."

~ Roger Caras

Dogs are important to many. They are faithful companions and friends,
always there without question. For many with dystonia, dogs offer the
guidance and support needed to help their owners get through the day.

Dogs4Dystonia came from Janice and Len Nachbar and Joanna Manusov,
long-time volunteers in the Central NJ area. The DMRF is grateful to
Janice, Len and Joanna for creating this wonderful program.

Dogs4Dystonia Dog Walks are a great way to bring together family, friends
and the community together for a fun time in support of a good cause.
Whether you are a dog owner, a dog lover, or someone who just wants to do
something for dystonia, the Dogs4Dystonia Dog Walks may just be up your
alley.

Do you have the cutest dog?
Is your dog the best tail wagger out there?
How does your dog rate?

Stay tuned for more information on how to enter your dog into the
Dogs4Dystonia Virtual Dog Walk. Get your cameras ready and start capturing
those attention grabbing shots of your four legged friend!

Would you be interested in bringing a Dogs4Dystonia Dog Walk to your
community? Email Lissa at
[mailto:lsalvatierra@dystonia-foundation.org?subject=Dogs%20for%20Dystonia%20Dog%20Walk]
lsalvatierra@dystonia-foundation.org today!

Follow Dogs4Dystonia on Facebook

[http://www.facebook.com/pages/dogs4dystonia/310473013264]
http://www.facebook.com/pages/dogs4dystonia/310473013264

and on Twitter

[http://twitter.com/dogs4dystonia] http://twitter.com/dogs4dystonia

Other Upcoming Events

Should you prefer to organize your own event in support of the DMRF, we
are here to help. Call us today at 312.447.5095 to get started!

2/12/10 [http://www.rsvpbook.com/event.php?449115] MN Sleigh Ride, Dinner
and Concert
4/23/10 Margaritaville (MA)

4/24/10 Flea Market (NJ)

Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at

[mailto:enewsletter@dystonia-foundation.org?subject=Feedback%20about%20eNews]
enewsletter@dystonia-foundation.org

Would you like to access the newsletter 24/7?

[http://dmrfenews.blogspot.com/] dmrfenews.blogspot.com

Would you like to receive updates by text message?

Text DYSTONIA to 90999.

Are you an iPhone

or iTouch user?

If so, check out the DMRF's new app to stay up-to-date on the latest news
from the Foundation and the dystonia community.

To get the app, visit the iTunes App store and search for "DMRF app".

Join us on one of our social networks:

[http://www.facebook.com/inbox/?ref=mb#/pages/Dystonia-Medical-Research-Foundation/46820882711]

[http://www.myspace.com/thedmrf]

[http://thedmrf.ning.com/]

[http://twitter.com/dmrf]

Contact Information

One East Wacker Drive, Suite 2810
Chicago, Illinois 60601
800.377.3978

[mailto:enewsletter@dystonia-foundation.org?subject=Questions,%20comments%20or%20concerns]
enewsletter@dystonia-foundation.org
[http://www.dystonia-foundation.org/] www.dystonia-foundation.org
© 2009 DMRF