November 2010 - to ensure delivery, please add
email@example.com to your address book.
Dystonia & Managing Holiday Stress
The holiday season is a time of parties, shopping, decorating, and time spent
with family and friends. While full of excitement, this can also be a time of
increased stress which may exacerbate or worsen dystonia symptoms. Please join
us on Wednesday, November 3 at 6:00pm central time for a webinar on Holiday
Stress. In this webinar, moderated by Dr. Bryan Bernard, Neuropsychologist at
Rush University Medical Center, you will learn more about coping with stress
and techniques to manage it.
To register for the webinar, please click here.
Mid-Atlantic Regional Dystonia Conference
The Greater Washington DC Dystonia Support Group invites you to attend the
Mid-Atlantic Regional Conference on November 14, 9:00am-5:00pm.
Holy Cross Hospital
1500 forest Glen Road
Silver Spring, MD
Join us for a special one day conference where some of the top experts in the
field will present the latest dystonia research, treatments and much more. We
are pleased to
offer you this conference at no charge with lunch included.
Pre-registration is required!
Registration Deadline: November 7, 2010
For more information or to register please contact Elena at
firstname.lastname@example.org or 703.521.7918.
The Power of Your Story
Using Your Experience to Promote Dystonia Awareness
Each of us who have been touched by dystonia has a story. Each of these stories
is an important and powerful tool to educate the public about dystonia.
These are just a few examples of how you can share your story to improve
* Share your experiences on any of the DMRF's many online social media
websites (Facebook, MySpace, Ning, YouTube, and the Online Dystonia Bulletin
Board). You'll receive support if you are struggling and provide comfort to
others who may be going through a difficult period.
* Contact a local newspaper, radio, or television outlet and tell them you
have a terrific idea for a story: Dystonia and how it affects your life. Don't
give up if you don't succeed right away.
* Offer to speak to youth or community groups about dystonia and your
dystonia journey. Many clubs are eager for guest speakers and new topics.
* Consider sharing your story to help greater awareness to dystonia and the
need for a cure.
DMRF member Janice Nachbar educates Continental Airlines employees. She
wrote to Continental Airlines about her daughter Joanna Manusov's (left, with
rightfielder Nick Swisher) experiences traveling with dystonia, and the letter
was published in Continental's employee newsletter. The article will reach
45,000 Continental employees.
Click here to read the article "My Daughter Joanna".
DMRF member Jason Dunn (left) appeared in a television program called
Extraordinary Humans: Muscles on the National Geographic channel which
premiered this past June during Dystonia Awareness Week 2010. Jason shared how
generalized dystonia affects his daily life.
Twelve-year-old Aidan Grasmich of Palmer, Alaska shared his story with the
Frontiersman newspaper earlier this year. Aidan (left) is pictured with parents
Sharry and Chad Grasmick, Sisters Jade and Mai, and family friend and longtime
DMRF volunteer Dee Linde during a meeting in Portland, Oregon.
DMRF member Pat Brogan (left) and his service dog Hutch made a presentation
about dystonia to a 12th grade anatomy and physiology class at Muhlenberg High
School in Laureldale, Pennsylvannia. Pat and Hutch are pictured with teacher
Rich Kolka and guidance counselor Tim Potopa.
DMRF support groups promote dystonia awareness year round thorough grassroots
events and activities.
Dystonia Awareness Week is June 5-11, 2011
It's not too early to make plans to promote dystonia awareness in 2011 and
participate in Dystonia Awareness Week along with DMRF volunteers throughout
For more information about how you can help promote awareness, contact, your
local support group or the DMRF at 800-377-3978 or
11/07/10 ING New York City Marathon
11/08/10 Dine for Dystonia (Freehold, NJ)
11/13/10 Dystance4Dystonia Walk (Santa Clarita, CA)
Carson's Community Day (Nationwide)
North Bay CA SG Meeting
New Mexico Dystonia SG Meeting
Fairfield, CA Dystonia/ST SG Meeting
San Diego County SG Meeting
11/14/10 Mid-Atlantic Regional Conference
11/15/10 Palm Springs California SG Meeting
11/21/10 Philadelphia, PA Marathon
11/28/10  Help Find a Cure for Dystonia (West Hazleton, PA)
12/04/10 Southeast PA DMRF SG Meeting
12/11/10 Central Jersey Dystonia Support & Action Group
For information about these or other events, please email us at
Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at
Go the Dystance4Dystonia and run for those who can't!
Host a Dogs4Dystonia Dog Walk in your community today!
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Text DYSTONIA to 90999.
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© 2010 DMRF