DMRF eNews - October 2010

DMRF eNews
October 2010 - to ensure delivery, please add
[12]enewsletter@dystonia-foundation.org to your address book.

Dystonia International Patient Registry- Register Soon!

Please join us on Tuesday, October 5th, at 6pm central time for an informative
webinar to discuss the Dystonia International Patient Registry (DIPR), founded
by Tyler's Hope for A Dystonia Cure and supported by the Dystonia Medical
Research Foundation.

The goal of this registry is to develop a comprehensive list of all individuals
who carry any of the dystonia gene deletions, specifically the DYT1 gene
deletion and their family members worldwide. It is the first and only dystonia
registry to attempt to capture this information to assist researchers in
finding a cure to dystonia.

In this webinar, moderated by the DIPR's Medical Advisor Dr. Michael Okun, you
will learn more about patient registries and why they are important, along with
more specific information about the DIPR.

To register for the webinar, please click [13]here.

Dystonia Coalition News

DMRF is pleased to announce the funding of two new Career Development Awards in
partnership with the Dystonia Coalition. Career Development Awards are awarded
to young clinical investigators to help them establish careers in dystonia
research.

To learn more about these awards, please click [14]here.

To learn more about the Dystonia Coalition, click [15]here.

You can [16]help make a difference in dystonia research!

Participating in Clinical Trials

Have you ever thought about participating in a clinical trial? Patients play an
invaluable role to researchers carrying out these studies-without you it would
not be possible!

To learn more about clinical trials and how to find trials that may be
recruiting, please click [17]here.

Dystonia & Managing Holiday Stress

The holiday season is a time of parties, shopping, decorating, and time spent
with family and friends. While full of excitement, this can also be a time of
increased stress which may exacerbate or worsen dystonia symptoms. Please join
us on Wednesday, November 3 at 6:00pm central time for a webinar on Holiday
Stress. In this webinar, moderated by Dr. Bryan Bernard, Neuropsychologist at
Rush University Medical Center, you will learn more about coping with stress
and techniques to manage it.

To register for the webinar, please click [18]here.

Available Now!
Twisted - Award-winning documentary by Laurel Chiten featuring several DMRF
members, provides an inside glimpse into what it means to live with dystonia.
Proceeds from your purchase will support the DMRF research programs.

These newly available copies of Twisted were made possible by a generous gift
from Ira Tritt in memory of his beloved wife, Shari Farber-Tritt.

Get your copy of Twisted today, please click [19]here.

Carson Pirie Scott Community Day - DMRF is partnering with the Bon-Ton family
of stores (Bon-Ton, Bergner's, Boston Store, Parisian, Elder-Beerman,
Herberger's, Younkers) through the sale of coupon booklets, good toward store
merchandise. With 100% of our booklet sales benefiting dystonia. Each coupon
booklet is on sale for $5.

If you would like to make a purchase, please click [20]here.
Look for the coupon booklet under Special Event.
Upcoming Events

[21]
10/09/10 [22]Alabama Dystance4Dystonia Run
[23]Central Virginia Dysphonia-Dystonia SG Meeting
10/10/10 [24]Bank of America Chicago Marathon (Chicago, IL)
10/14/10 [25]Central Iowa Dystonia SG Meeting
10/16/10 [26]Baltimore/John Hopkins SG Meeting
[27]PA Dogs4Dystonia (Kingston, PA)
10/17/10 [28]Portland, OR & SW Washington SG Meeting
10/24/10 [29]6th Annual Basket Bash (Chicago, IL)
10/28/10 [30] Annual NJ Tricky Tray (Woodland Park, NJ)
10/30/10 [31]Tulsa Fun Run (Tulsa, OK)
11/13/10 [32]Dystance4Dystonia Walk (Santa Clarita, CA)
[33]Carson's Community Day (Nationwide)
[34]North Bay CA SG Meeting
[35]New Mexico Dystonia SG Meeting
[36]Fairfield, CA Dystonia/ST SG Meeting
11/14/10 [37]Mid-Atlantic Regional Conference
11/15/10 [38]Palm Springs California SG Meeting
11/28/10 [39] Help Find a Cure for Dystonia (West Hazleton, PA)
12/04/10 [40]Southeast PA DMRF SG Meeting
[41]
[42]

For information about these or other events, please email us at
[43]enewsletter@dystonia-foundation.org.

Tell us how we are doing. We would love to hear your thoughts about the
newsletter. Email us today at

[1]enewsletter@dystonia-foundation.org

[2]Go the Dystance4Dystonia and run for those who can't!

[3]Host a Dogs4Dystonia Dog Walk in your community today!

Would you like to access the newsletter 24/7?

[4]dmrfenews.blogspot.com

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Text DYSTONIA to 90999.

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Contact Information

One East Wacker Drive, Suite 2810
Chicago, Illinois 60601
800.377.3978
[10]enewsletter@dystonia-foundation.org
[11]www.dystonia-foundation.org
© 2010 DMRF